James got a call from Ethan's GI doc on Monday. He said Ethan has mild to moderate reflux. We are to just keep doing what we are doing with his meds (he is on a pretty good dose of Prevacid), but unless the pulminologist found anything, we shouldn't have to do more.
Well, James got a call from the pulminologist Tuesday. They found that Ethan has food particles in his lungs. So, they want to do a swallow test to see if he is swallowing correctly. If he isn't swallowing correctly, then we will go from there. If he is swallowing correctly and the food in his lungs is from reflux, then we have an issue. The doctor told James that if it is reflux, we most likely would have to do surgery to get his reflux calmed down so his asthma isn't caused by the reflux. (does that make sense?) Probably not, but a lot of this doesn't to me right now. I am determined not to let him go through a surgery without for sure knowing that we can't control it any other way. If I have to, I will get a 2nd or maybe even 3rd opinion.
I just don't want to have to put my baby through any more. :( I hate this! I hate that he got sick. I hate that he lost weight and the Dr was so concerned. I hate that we had to do the procedure two weeks ago. And now this. Prayers are greatly appreciated right now. I want Ethan to be able to thrive and grow and be just like any other little boy. If this is what we have to do to get there, so be it, but don't think that I won't fight tooth and nail to keep him from having to have surgery!!
Taking personal responsibility
12 hours ago
2 comments:
OH Jess I am so sorry you are having to go through all that with him :( The swallow test isnt a big deal, and if it makes you feel better PJ is on Prevacid too for reflux. Remarkably, all of that made sense to me- but I know a lot about gastro things. I know you will do what's right for him, even if that eventually means surgery. I have had the procedure that they are probably talking about for him- recovery takes some time from it, but if he has to have it- I will tell you he will feel so much better after its done. I know thats not much piece of mind, esp. after all he's been through in his life. Our thoughts and prayers are with you both!
Poor little guy. :( I hope the docs can get this figured out for him ASAP and he can move on, healthy as can be.
Post a Comment