The boys are sick again, mainly Grant, but they don't feel good. We are at home though!!! We have had some problems with keeping food down, but not too much with the breathing right now.
Ethan is probably doing the best. He threw up a bit last night but that was cause I was suctioning his nose and he didn't appreciate it. He is on antibiotic right now for an ear infection we caught a week ago. So I think that is why he is doing better than the other two.
Alex isn't doing too bad either. He just gets to coughing and gags, then you know what happens. They are all taking fluids just fine so I'm not as worried about dehydration as I was before. He is a happy little boy other than a bit of congestion, funny nose and a cough. They aren't deep coughs either. It's more a cough cause their noses are draining so much.
Grant feels the worst right now. He is working a bit hard to breath so we put him back on o2 while sleeping. I don't want him getting so bad we have to go back to the hospital. Luckily we still have the o2 stuff here. The company hasn't come back for it yet. Otherwise he is eating fine and keeping his food down. Just the cough/drainage irritates him.
So, I guess I shod update you a bit on what has happened since my last post. Ethan got out of the hospital on the 17th. They all were on o2 till Tuesday of last week. We went to our Pediatrition and she said Grant and Alex could come off. Ethan went to his pulminologist on Thursday of last week and she said to keep him on it for a few more weeks and then we'd do a pulse-ox study to see if he can come off. We are fine with that.
She referred us to go see a GI doctor for Ethan though. She doesn't like his lack of weight gain but isn't convinced it is due to lack of o2. She thinks it might have more to do with reflux. Who knows. We will go see him on April 5th.
I am not sure his lack of weight gain is completely reflux or o2 related. You should see him... he is constantly moving!!!! He never stops!!!! I think he just burns tons of calories and just doesn't eat enough to offset that. He is on a very fortified diet. He gets butter, oils, peanut butter, and carnation instant breakfast in every milk(a full package). I don't know how to get anymore calories in him. He will not snack like his brothers and he eats like a bird. I have even tried feeding him more meals and he just throws if he gets too full. Who knows... we'll see what the GI doc says.
So that's all for now. Prayers again for health are much appreciated. We need to get well soon cause we are all getting cabin fever.
